Thank you all for the prayers and positive thoughts this weekend, after waiting 3 1/2 hours, we got a bed at UCLA today. I may have mentioned this, but because of Jenelle's new diagnosis of Metabolic Acidosis, the team here at UCLA is approaching the Diet differently, and Jenelle did not need to "fast". Which was a good thing because Jenelle has been getting pretty hysterical these days if we are too late with her meals! She has already had her first "keto" meal of eggnog and flavored water. She'll get another serving around 8:00 p.m., and again at 10:00 p.m. if she is still awake. We're going to keep this up and will hopefully start real "keto" food later tomorrow.
Thanks for keeping us in your thoughts and prayers. I'll update again if I can tomorrow! We should be here until at least Thursday.
Monday, April 18, 2005
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