What a long strange trip it's been...

Kelly here. We had a follow up with my oncologist today. She really wants to watch this rash to make sure things don't get out of hand. I really don't remember a lot of what happened in the hospital, but my doctor said it was quite serious, and I'm very lucky.

As you know, I was admitted on May 22 for infected mouth sores. When I started to spike a fever of 104.8, I was very scared. Scared for my life. They threw a lot of meds at me, and it worked and the fever went away. A few days later I started to get a rash, which they assume was from one of the many drugs they had me on. And then I hit a fever again of 104.8. We found out that I'm very sensitive to drugs, and we now know I'm allergic to Latex. Brett and my Mom tell me there was a point when my sodium level was down, and my kidneys were not working well. My heart rate also dropped very low. I was hallucinating, and I really don't remember any of it, but my Mom says I didn't stop talking. At that point, I was moved into more of an ICU type room for a few days. My fever was gone for a good 4 days, but the rash (as you've seen in photos) was worse, and is very painful in my joints. I am using morphine every 4 hours for the pain.

The hospital decided with my fever gone, it might be best to rest at home with the rash, so as not to risk any infection I could get at the hospital. My biggest motivator in agreeing to go home was that they would stop poking me for blood draws. Remember, I don't have a PICC line anymore, and they had to change my IV site every 5 days to avoid infection, and of course I was poked every morning for labs, cultures, etc.

I'm doing well at home. Still in a lot of pain, but resting and eating better.

Thank you all for the prayers. This last hospital was frightening to say the least, but at least now I know I will survive. I'll update again when I can. KCA!

Kelly is home..

Kelly got home late last night and went straight to bed. She is still very tired. She is walking much better. The kids were very excited to see her. Jenelle saw her and had the giggles for 10 minutes. She was very excited to see mommy. Jack really enjoyed saying goodbye to mommy this morning. The smile on his face was priceless. He couldn't be happier. We have an appointment next week to see if the cancer is gone. We still have a couple more big steps. Thank you to everyone. You thoughts and prayers have been very helpful. KCA/KRA

KRA..

Kelly's fever went back to 103 on Friday and has been back below 100 since. So we do have some progress. Kelly is starting to eat a little more, for Kelly that isn't saying much. She still gets tired walking to and from the bathroom, which is about 6 feet from her bed. The rash seems to be getting better. I do have pictures of the rash that I will try and post when I get them off my phone. Not sure you want to see them. I don't. But it will give you an idea of what she is dealing with. Jack really misses his mommy. Asked me every day when she is coming home or can he call her. My guess is she can come home by the end of the week. YEAH!!! We will KCA!!! Now we just need to kick the rash's... And she will. Go Kelly, go Kelly, go Kelly...Below is the picture. Keep in mind she has this rash from head to toe.

Fever down..

Kelly's fever has been below 100 for 36 hours. That is great news. The doctors have said the rash is not chicken pox. They believe it is a drug allergy. Then why do they keep giving her drugs? The rash is still nasty. The biopsy came back negative. She still can't walk without help. She is sleeping most of the day. Her sodium, potassium and magnesium are still low. At least her fever is down and if it stays down she should start to rebound quickly. On a side note Jenelle has had a couple of really bad seizures. She had to be sent home from school today because she had a 5 minute seizure. I don't think she likes mommy getting all the attention. But the fever being down is good news. And we will take it. I found a Cold Stone within walking distance. So Kelly wants ice cream for dinner. Sounds good to me.

Kelly update..

Daddy here, Kelly asked me to give everyone an update. There is so much to cover I don't know where to start. Over the weekend the hives got worse. They have covered her entire body. Her fever got worse. It got as high as 104.8. The fever went up and down between 104.8 and 100 for the past 6 days. She had the shakes so bad they gave her morphine and Demerol just to get her to relax. Then they gave her an overdose of narcotics over the weekend when they added adavant. Which put her into a kind of mental coma for 4 days. She was very incoherent. Not completing sentences and talking in a strange language. She still isn't sure what day it is. They put her on 4 different types of antibiotics. They don't know what they are treating. Her sodium & potassium levels got so low they got concerned about her organs failing. Not sure if that was a possibility. Over the weekend her heart rate dropped to 65 over 40. I think. I was scary low. That combined with everything else scared me to death. Her heart rate is back to normal as are the other things. They did a biopsy of her rash to see if it might be chicken pocks or shingles. They started treating it and she started to have a reaction to that medication. They have done 3 x-rays, 3 CT scans and an MRI to see what is wrong. Nothing so far. Sounds like our daughter. She is speaking much better today. Still very tired. The nurses have been incompetent to say the least. There have been more screw ups then I can count. She is constantly talking about her death and funeral. I miss my positive wife. I am sure she will be back to bossing me around telling me what I am doing wrong in no time. The normal wife I know and love. Sorry to be such a downer, but I thought you should know what is going on. We need a break here. Thank you for all the thoughts and prayers.

High fever and hives

In the last two days my fever has been as high as 103.8. Today it is a little lower around 101. Unfortunately, I started getting hives this morning - not fun. Needless to say, I'm miserable, and still in isolation.

Please keep those prayers coming! Who knew this last round would go with a bang!

Spoke too soon!

This morning I woke with a low grade fever of 100.8. At the last vitals, it was 101.8. The doctors ran some more blood cultures and want to watch it for now. The good news is that my neutrophils are at 200, but they won't release me now until it hits 500 and the fever subsides. The doctors think I just need the boost of my immune system to help get rid of the fever.

So please keep doing the ANC dance, and pray for this fever to subside. Thanks for the continued thoughts and prayers. KCA!