Our daughter Jenelle suffers from a rare form of Epilepsy called Lennox Gastaut Syndrome (uncontrolled seizures), global development delays, cortical blindness, low muscle tone (hypotonia) and "failure to thrive" for which she has a G-Tube. This "blog" is a collection of email updates to family and friends about Jenelle, and also has some thoughts from me (Jenelle's Mom) on occasion. To start at the beginning, please click on the archive link at the right for May 2003 - that is where the story/updates really begin. To learn more a little more about Jenelle, click on the link "Background on Jenelle" also found at the right.
Here are some statistics about Epilepsy:
"Epilepsy and seizures affect 2.5 million Americans of all ages, at an estimated annual cost of $12.5 billion in direct and indirect costs. Approximately 181,000 new cases of seizures and epilepsy occur each year. Ten percent of the American population will experience a seizure in their lifetime. Three percent will develop epilepsy by age 75."
Please check out Jenelle's Epilepsy Awareness Bracelet! (click on charity bracelets and scroll down) Right now, there is no cure for Epilepsy, however the fight remains strong. We appreciate your prayers and support - Thank you for visiting and sharing this site!