Wednesday, Jenelle had to be picked up from school because of a fever and vomiting. She seemed fine except for a runny nose, but we kept her home Thursday just in case. By then, it was just a runny nose for her, and I started to feel congested and sick.
As a precaution, I called UCLA to get their thoughts on what to do if I got worse. The next day the nurse called back to tell me to page her over the weekend if my mucus had color or if I were to get a fever. They really want to avoid using an anti-biotic if we can, and told me to use regular over the counter drugs. So far this weekend, I have a normal cold and no signs of infection, but still it isn't fun. As a bonus, Brett started to get sick on Friday. Jack has an immune system of steel, I must figure out how he manages to avoid everything.
I still have some time before going back to the hospital, but I am worried that I will be as strong as I was after this little set back. I hope this cold goes away quickly so I can have some time to recover and get stronger before starting Chemo on January 27. I also hope this doesn't delay it.
Please send some "get well" prayers our way. And special prayers that this doesn't get worse for me, or go into pneumonia. That's all for now, I'll update more later.
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7 comments:
Prayer just sent up... :)
Hang in there mamacita!!
okay, saying the prayer right now. dammit.
Thanks for the update. I am thinking of you, always.
I added you to the prayer list at church today. :) So, hopefully the Texas Catholics can boost your prayers on up a little higher. I hope you feel better soon.
I hope you get to feeling better soon - and sending all kinds of good thoughts and prayers your way!
Hi there,
I found your site from your youtube postings about epilepsy. I too have a 6 year old who we just found out is having very frequent absence seizures after being written off for years as autism spectrum disorder. (she has misdiagnosed by the neurologist and a 2nd and 3rd opinion have confirmed epilepsy). We are totally confused and still trying to figure out exactly what this means for her and us. I just wanted to thank you for blogging about your daughter and helping other families. I will pray for you through your KCA. (love that term!) Your strength shows through in your writings.
God Bless,
Kelly
Hello, I have just come across Jenelle's blog and am struck how similiar her story is to my daughter's .
Has Jenelle been tested for CDKL5?
Please have a look at http://www.cdkl5.com I am sure you will agree.
I also have a blog http://www.cdkl5-angelkeeper.blogspot.com
If you have any questions please feel free to contact me.
I am also praying for you. You ar an amazing lady.
HUGS.
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