Kelly here. We had a follow up with my oncologist today. She really wants to watch this rash to make sure things don't get out of hand. I really don't remember a lot of what happened in the hospital, but my doctor said it was quite serious, and I'm very lucky.
As you know, I was admitted on May 22 for infected mouth sores. When I started to spike a fever of 104.8, I was very scared. Scared for my life. They threw a lot of meds at me, and it worked and the fever went away. A few days later I started to get a rash, which they assume was from one of the many drugs they had me on. And then I hit a fever again of 104.8. We found out that I'm very sensitive to drugs, and we now know I'm allergic to Latex. Brett and my Mom tell me there was a point when my sodium level was down, and my kidneys were not working well. My heart rate also dropped very low. I was hallucinating, and I really don't remember any of it, but my Mom says I didn't stop talking. At that point, I was moved into more of an ICU type room for a few days. My fever was gone for a good 4 days, but the rash (as you've seen in photos) was worse, and is very painful in my joints. I am using morphine every 4 hours for the pain.
The hospital decided with my fever gone, it might be best to rest at home with the rash, so as not to risk any infection I could get at the hospital. My biggest motivator in agreeing to go home was that they would stop poking me for blood draws. Remember, I don't have a PICC line anymore, and they had to change my IV site every 5 days to avoid infection, and of course I was poked every morning for labs, cultures, etc.
I'm doing well at home. Still in a lot of pain, but resting and eating better.
Thank you all for the prayers. This last hospital was frightening to say the least, but at least now I know I will survive. I'll update again when I can. KCA!