Thursday, August 18, 2005

Cute as a Mic-key Button!

And there it is! Just like that!

We took Jenelle into see the GI doctor today to get her "low profile" mic-key button. They warned us that it would be painful, because the temporary tube she had was being held in place by a plastic disk. They literally had to "pull" it out of her. She actually did better than Mommy & Daddy, who left the room when given the opportunity, so we did not witness the actual "pulling" though you could hear her down the hall! (BAD PARENTS!)

So she has her new button, and that is the good news. The bad news is that with all of Jenelle's recent activity, she has lost 2 pounds! :( She is back to 24 pounds, and has only gained an ounce since we last saw the GI doctor. Really the bad news is not so bad because she lost weight because she is more active, but they want her to gain weight, so we have to increase her calories with three extra cans of Pediasure with fiber.

I haven't mentioned this yet, but, Jenelle is no longer eating food by mouth - something we were hoping to avoid. I'm not sure why - if she has lost skills, or if she is simply not interested because she is so full from her night feeds. My biggest worry is that she is regressing, which is really just "mommy worry" because she is doing so many other new things, this is probably not the case. The other is that she has not been eating well by mouth since her status seizure in May, which could mean she has lost skills from that pro-longed seizure. We will address this issue further with her Neurologist next time we talk.

Thanks for the continued prayers - I'll keep you posted!


Danielle said...

Great title!!! Jenelle is so darn cute! And I would bet that it is more from being FULL than from loosing skills. Keep us updated. Thanks for sharing the pic!

Kyra said...

I'm glad all went well with getting the new button.

I'm sure she's just not eating by mouth because the food is already in her tummy. I know this happens sometimes with tubes. The tube is inserted because they aren't eating enough, and then they quit eating once it's in place.

I do have to say, though, that I think Jenelle would look awfully cute with a little belly poking out there, so I'll pray for a bigger appetite for her!