Jenelle had a follow up with Dr. Shields today at UCLA. The last time we saw Dr. Shields in July, he put her on a new medication called Vimpat. We had hoped it would help decrease her absence clusters. Today, I told Dr. Shields about her recent 9 minute grand mal, and the 4 minute tonic seizure she had a week ago (I didn't mention it in an update previously because it stopped without intervention.) We decided that the Vimpat is not working, and that we should move onto a new drug called Banzel.
The drug Banzel is specifically FDA approved for children with Lennox Gastaut Syndrome. Instead of waiting to wean off Vimpat, we are going to add Banzel to the drugs she is already taking (Felbatol and Vimpat.) Remember, one thing at a time, so we know what works and what doesn't. We'll see him again in 3 months, or sooner if we have a bad experience with Banzel.
That is all for now. I will keep you posted.