Just a quick update. Jenelle got her new AFOs on Monday. The jury is still out on whether or not we like them, but so far she seems to walk better with them. I'm waiting to see what her Physical Therapist says today. The new AFOs have a shorter foot plate then what we had on the old ones (i.e. her toes stretch out past the plastic - something I usually know to look for when its time to order new ones!) In fact, the first thing that came to mind was that if I took another photo of all her AFOs lined up (like above) they would appear smaller. How horrible is it that my first thought is that this new equipment for Jenelle won't look good on her blog! Anyway, the goal with this new design is to get Jenelle to plant her weight on her heel. So far things look good. I'll post photos when I can so you can see the difference.
Not sure if I had mentioned this previously, but we had been waiting for a wheel chair repair on Jenelle's main wheelchair that she uses for bus transportation. Back in April, the foot rest broke off at the metal. Jenelle cannot ride the bus without her foot restraints (bus transportation's rule.) Luckily, our "other" wheelchair we have (the purple one you see most frequently in photos) also has the ability for bus transport, so we've been OK. Well, after waiting for insurance approval to check it out for repair, and taking time off to wait for the repair man, we got some rather bad news. The chair is over 5 years old and the warranty is expired. It was previously purchased by my former insurance, so the new insurance won't cover any repairs, and Jenelle has out grown it. That last part we expected because she has had that first chair since she was 18 months old. Now we have to go through an authorization request for a new wheelchair for Jenelle. Good times! Thankfully we have the back up so it won't disturb her school schedule.
And, speaking of school... There are a lot of things are going on right now in regards to a possible change in Jenelle's services. Unfortunately, I can't say much more than that. Please keep us in your good thoughts on Wednesday, June 25 in that regard as we fight the good fight.
That's all for now. Thanks for your continued thoughts and prayers.
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2 comments:
It was great meeting you and your beautiful family. I can see why Danielle loves you all. You are a great mommy with really neat kiddos and a nice hubby! I loved our evening together. Danielle's mom (Cindy :)
we know exactly what that wait for a new wheelchair is like! Arrrrrrggggggg! I hope things went well for your family on the 25th.
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