I was going to send an update late Friday, but me being the superstitious seizure Mom that I am, I decided to wait the weekend to make sure the good news was true. After increasing her regular seizure medicine Felbatol, Jenelle's seizures are finally under control again. Thank you all for the thoughts and prayers!
We went to a couple of BBQs this weekend with some friends and with family who haven't seen her in a while. Everyone was quite amazed with her progress. This weekend she's been a little cranky, and in all honesty we're not sure why. Brett thinks it could be her teeth, and I am wondering if its the increase in meds. Other than that, things are great and hopefully with time her crankiness will subside.
Earlier this week, Jenelle was casted for new AFOs (Ankle Foot Orthotics) and I purchased some sound reduction head phones to help cancel all the extra noise at big places like restaurants (or Angels games!) Even though she doesn't like things on her head, she actually hasn't minded wearing the ear phones. Probably because they help with all that extra stimulating noise!
That is all for now. We hope you are enjoying this long holiday weekend. Thanks again for the thoughts and prayers. Once again, they have helped!
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3 comments:
Fun stuff going on! Just wondering, were you able to find child size sound reducing headphones? I'd love to get some for Caitlyn!
Where did you get the headphones? Ivey hates things on her head, but I would love to try them, even if she is tiny.
I've been looking for a post to compliment you on your banner. A row of AFOs - says a lot to me. The first 3 pair look like DAFOs - are they?
Great news that her seizures are under control.
All the best, Barbara
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