Well, this week has been a bad one for Jenelle as far as seizures are concerned. Earlier in the week, Jenelle had a bad cluster of seizures ending in our having to use Diastat (her emergency seizure medication.) She had a cluster of seizures that went on for almost 2 hours, but the Diastat did its job! UCLA thinks teething might be the culprit so we are going to continue to monitor these seizures. This is why we have Diastat, and hopefully we can stay out of the ER!
However, onto the good news … Jenelle has made HUGE strides in eating this week! As of last weekend, Jenelle has been taking 3 jars of baby food by mouth each day, and is drinking her formula from a special straw out of the can! Her school informs me that they haven't used her g-tube for feedings at all, and at home, we've only used it for medications or to finish a feeding if she seems too tired. This progress came out of nowhere, and is simply amazing. I honestly think I had given up on any chance of Jenelle ever eating by mouth. She also likes special cheetos, bread and croutons. We think her desire to start chewing was instigated by her teething, so with that in mind, we'll deal with the seizures!
That is all for now. Thanks for your continued prayers - I'll keep you posted!