Just a little post 4th of July update on our girl. We had a wonderful, long 4th of July weekend as Jenelle was out of school until today. We took the opportunity to get out of town and go to the Curran Cabin at Lake Arrowhead. Lake Arrowhead had a boat parade on the 2nd and their 4th of July fireworks the night before on the 3rd. The weather was beautiful, however, Jenelle did not seem to do well in the higher altitude. We're not really sure why she was acting so "differently" and can only assume it was the new environment as she does not seem to be getting sick. Her unusual behavior included some noticeable seizures, and a very, very quiet demeanor. Normally, Jenelle is constantly moving and cannot be kept still. However, during our time in Lake Arrowhead, she didn't wiggle, giggle or kick like she usually does - which did provide a bit of respite for us, but had us concerned as well. She took 3 naps in one day, and seemed to cry a lot in the evenings - most of which calmed down after a bit of Tylenol. She enjoyed looking at the lake and playing at the park, and didn't mind the fireworks one bit!
We were home on the actual holiday and Jenelle was the center of attention with our neighbors at our neighborhood block party. Many have noticed her improved tone and many commented that she simply looks like a little girl these days. Although the firework show was cut short by the Orange County Fire Authority (fireworks are illegal in Tustin) Jack and Jenelle both enjoyed the firework show in the middle of the street and Jack told me that "I make the best water balloons" as we enjoyed playing in the water balloon war with the other neighborhood kids.
I took Jenelle to school this morning, and she seems to be back to her usual wiggly self. We are looking forward to our next appointment with Dr. Shields on the 24th as we have lots to discuss.
Here is a photo of Jenelle "sitting pretty" at the Lake Arrowhead Village playground, with the lake in the background.
And here is our girl with "fireworks" in her hair!
We hope you had a safe and happy 4th of July. I'll keep you posted!
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3 comments:
Hey Kelly- I have been meaning to ask you think. What do you attribute Jenelle's remarkable progress to? Anthing specific, or just a combo of things?
I never post on here, but your other site. I follow Jenelle's progress and am so happy for you that she is showing such great improvement. What a blessing. As I think I have told you my neice has seizures also, but they are working on (I think) drug number 7 now. She is on 3 and still has 1 to 5 nocturnal seizures daily. What a tough road these poor children have! Best of luck to you and the beautiful little girl!
Jamie
I haven't been to Lake Arrowhead in a long time, thanks for reminding me.
Sounds like Jenelle is doing great.
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