tag:blogger.com,1999:blog-6645130.post581099381011946906..comments2023-07-02T11:59:05.334-07:00Comments on Jenelle's Journey: Initial meeting with the Metabolic SpecialistKellyhttp://www.blogger.com/profile/17256371707801041596noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6645130.post-31282383388690366072007-01-25T12:18:00.000-08:002007-01-25T12:18:00.000-08:00Man, does this sound familiar. I will say Knowing...Man, does this sound familiar. I will say Knowing exactly what "it" is is satisfying and frightening all at the same time. But isn't that the summary of our lives?<br /><br />BTW, the mitachondrial test was how we found out exactly what Ben had. He was already put to sleep while repairing his cleft palette.Ben and Benniehttps://www.blogger.com/profile/12165216797183902071noreply@blogger.comtag:blogger.com,1999:blog-6645130.post-66184159767575255962007-01-24T19:24:00.000-08:002007-01-24T19:24:00.000-08:00It's only natural to want to put a name to somethi...It's only natural to want to put a name to something that has affected your daughter so tremendously. Especially if there is some possible alternative treatment for her unique condition that might help her in the long run.<br /><br />Best of luck in finding answers, or at least ruling things out.Metehttps://www.blogger.com/profile/07276808432623125931noreply@blogger.com